Internet Tip of the Week:

Websites dealing with Shy-Drager Syndrome & Multiple System Atrophy
Alternative names for Shy-Drager Syndrome: neurologic orthostatic hypotension; Shy-McGee-Drager syndrome

Shy-Drager Syndrome is a progressive disorder of the central and autonomic nervous systems. The disorder is characterized by excessive dropping in blood pressure which can cause dizziness or momentary blackouts upon standing or sitting up. Shy-Drager Syndrome may be difficult to diagnose or may be misdiagnosed in the early stages because it may take years for some key symptoms to reveal themselves.

Multiple System Atrophy has three forms:
1. Shy-Drager Syndrome (SDS)
2. Sporadic Olivopontocerebellar Atrophy (OPCA)
3. Striatonigral Degeneration (SND)

NINDS Shy-Drager Syndrome Information Page
http://www.ninds.nih.gov/health_and_medical/disorders/shydrger_doc.htm National Institute of Neurological Disorders and Stroke Government Web Site Overview of Syndrome with prognosis and treatment options

National Dysautonomia Research Foundation
http://www.ndrf.org
*Dysautonomia is a disorder that involves a dysfunction of the autonomic nervous system. Multiple System Atrophy (Shy-Drager Syndrome) is one such dysfunction.
*Non-profit foundation that provides a support network for afflicted individuals and family members by providing information on the various forms of Dysautonomia. Provides links to other organizations
*Offers a national conference and seminars to health professionals.

American Autonomic Society - Physician Specialty Listing
http://www.mc.vanderbilt.edu/gcrc/aas/refs.html
*Find a physician who treats MSA in your area – Search alphabetically or geographically

Support Group for afflicted individuals
http://freepages.health.rootsweb.com/~charmayn/
*Created by a RN who has a husband with MSA.
*Links to various sites about research, fundraising, finding a physician, memorial/tribute sites and a featured item site

Shy-Drager Syndrome/Multiple System Atrophy Support Group (SDS/MSA)
http://www.shy-drager.com
*The SDS/MSA Support Group is an information center and a "Helping Hand" for
* People with the syndrome. Through various programs, including the continuation of the national patient/caregiver support group meeting, support of local groups. Website is still under construction.
*Organization also offers a toll free help line & quarterly newsletter in addition to the web site.

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